TY - JOUR
T1 - Challenges and needs in cerebrovascular disease pathway
T2 - A qualitative descriptive study from the patients' and healthcare professionals' perspectives
AU - Härkönen, Henna
AU - Myllykangas, Kirsi
AU - Gomes, Julius
AU - Immonen, Milla
AU - Kärppä, Mikko
AU - Hyvämäki, Piia
AU - Jansson, Miia
N1 - Publisher Copyright:
© 2024 The Authors. Journal of Advanced Nursing published by John Wiley & Sons Ltd.
PY - 2024/9
Y1 - 2024/9
N2 - Aim(s): To understand patients' and healthcare professionals' experiences to improve care in and across different domains of the cerebrovascular disease pathway. Design: A qualitative descriptive study. Methods: Semi-structured in-person interviews were conducted among 22 patients diagnosed with acute cerebrovascular disease and 26 healthcare professionals taking care of them in a single tertiary-level hospital from August 2021 to March 2022. Data were analysed using deductive and inductive content analysis. The consolidated criteria for reporting qualitative research was used to ensure reliable reporting. Results: Overall, 19 generic and 79 sub-categories describing perceived challenges with 17 generic and 62 sub-categories describing perceived needs were identified related to primary prevention, organization of stroke services, management of acute stroke, secondary prevention, rehabilitation, evaluation of stroke outcome and quality assessment, and life after stroke. Conclusion: Several challenges and needs were identified in and across the different domains of the cerebrovascular disease pathway. There is a requirement for adequate resources, early initiation of treatment, early diagnostics and recanalization, dedicated rehabilitation services, long-term counselling and support, and impact evaluation of services to improve cerebrovascular disease care. Future research on caregivers', and clinical leadership experiences in and across the cerebrovascular disease pathway is needed to explore the provision of services. Implications for the Profession and/or Patient Care: The results of this study can be applied by organizations, managers and research for developing and improving services in the cerebrovascular disease pathway. Impact: This study identified several patient-related, organizational and logistical needs and challenges, with suggestions for required actions, that can benefit the provision of effective, high-quality cerebrovascular disease care. Reporting Method: We have adhered to relevant EQUATOR guidelines with the COREQ reporting method. Patient or Public Contribution: No patient or public involvement.
AB - Aim(s): To understand patients' and healthcare professionals' experiences to improve care in and across different domains of the cerebrovascular disease pathway. Design: A qualitative descriptive study. Methods: Semi-structured in-person interviews were conducted among 22 patients diagnosed with acute cerebrovascular disease and 26 healthcare professionals taking care of them in a single tertiary-level hospital from August 2021 to March 2022. Data were analysed using deductive and inductive content analysis. The consolidated criteria for reporting qualitative research was used to ensure reliable reporting. Results: Overall, 19 generic and 79 sub-categories describing perceived challenges with 17 generic and 62 sub-categories describing perceived needs were identified related to primary prevention, organization of stroke services, management of acute stroke, secondary prevention, rehabilitation, evaluation of stroke outcome and quality assessment, and life after stroke. Conclusion: Several challenges and needs were identified in and across the different domains of the cerebrovascular disease pathway. There is a requirement for adequate resources, early initiation of treatment, early diagnostics and recanalization, dedicated rehabilitation services, long-term counselling and support, and impact evaluation of services to improve cerebrovascular disease care. Future research on caregivers', and clinical leadership experiences in and across the cerebrovascular disease pathway is needed to explore the provision of services. Implications for the Profession and/or Patient Care: The results of this study can be applied by organizations, managers and research for developing and improving services in the cerebrovascular disease pathway. Impact: This study identified several patient-related, organizational and logistical needs and challenges, with suggestions for required actions, that can benefit the provision of effective, high-quality cerebrovascular disease care. Reporting Method: We have adhered to relevant EQUATOR guidelines with the COREQ reporting method. Patient or Public Contribution: No patient or public involvement.
KW - cerebrovascular disorders
KW - healthcare personnel
KW - patients
KW - stroke
UR - http://www.scopus.com/inward/record.url?scp=85182243927&partnerID=8YFLogxK
U2 - 10.1111/jan.16055
DO - 10.1111/jan.16055
M3 - Article
AN - SCOPUS:85182243927
SN - 0309-2402
VL - 80
SP - 3767
EP - 3780
JO - Journal of Advanced Nursing
JF - Journal of Advanced Nursing
IS - 9
ER -